Support for Mesothelioma Caregivers

If you are a family member or close friend of a person diagnosed with mesothelioma, you may very well be helping to provide for his or her daily care. A caregiver is someone who gives basic care to a person with a medical condition that prevents him or her from independently conducting the activities of daily living. Caregivers of mesothelioma patients may help the person with bathing, dressing, preparing and eating meals, taking medicine, attending doctors’ appointments, paying bills and attending to other tasks of daily living.

Mesothelioma is challenging not only for the patient, but also for loved ones helping the patient with their daily care. Caregivers also deserve care, support and resources. This page provides information and resources to help you care for your loved one and yourself, too.

Where Can I Turn for Support?

Being able to discuss your experiences with other caregivers can be very beneficial. It is important to find the support you need to get through this difficult time. Learn how to find online and community-based support groups where you can connect with other caregivers, and find out about caregivers’ associations that can help support you as well.

Caregiving Tips

Learn about how the demands of being a caregiver can create stress and burnout. Learn to identify your feelings, prevent burnout, and take care of yourself while taking care of your loved one and playing your role as partner in your loved one’s care. Find practical tips for taking care of your own health, staying organized, creating a support system, setting limits and seeking help for yourself.

Taking Care of Your Loved One’s Needs

Caregivers may be required to make a number of decisions regarding their loved one’s health. This page outlines things you need to know about hospitalization and hospice care, including documents to have in order, information to provide to hospital personnel, and being part of the health care team.